Living with Brain Injury: Creating a New Life

The Brain Injury Association of Oregon

Living with Brain Injury:

Creating a New Life

Conference Program

The 3rd Annual Pacific Northwest

Brain Injury Conference 2005

Holiday Inn Airport Hotel 

Portland, Oregon

Friday, September 30 & Saturday, October 1, 2005

 Friday

 A Welcome letter from the Governor of Oregon

8:00 a.m. - 9:15 a.m.

Room C & D

Welcome to BIA Conference 2005—Wayne Eklund, President Brain Injury Association of Oregon

Opening with Traditional Tribal Ceremony

Ramona Ahto, WA, Bell Ceremony

Keynote Speaker - What is the Brain Injury Association and why you should care. 

Geoffrey Lauer, MA, Director of Affiliate Relations, from the Brain Injury Association of America 

9:30 a.m. - 10:30 a.m.

Track 1: Room B

            Current advances in assessment and management of low level neurological states.

Nathan Zasler, MD, FAAPM&R, RAADEP, CIME, DAAPM - CEO/ Medical Director of the Concussion Care Centre of Virginia, an outpatient neurorehabilitation practice, and, Tree of Life, a living assistance and transitional rehabilitation program for persons with acquired brain injury in Glen Allen, Virginia.

                        Moderator: Dr. Danielle Erb                    Assistant: Tom Boyd

• LLNS05

• LLNS

Track 2:  Room C

Assisted Movement with Enhanced Sensation (AMES): New Treatment for Brain Injury - Assisted movement, using a range-of-motion device, coupled with enhanced sensation, using a pair of tendon vibrators, was used to improve functionally the motor abilities of chronically brain-injured subjects (>2 yrs), 19 with ischemic or hemorrhagic stroke, and 1 with acquired brain Injury.  The experimental treatment “AMES” involved 30 min per day use of an arm-device or leg-device, which was placed in the subject’s home for 6 months.

Paul J. Cordo, PhD - Director, Senior Scientist, Neurological Sciences Institute, OHSU, Professor of Physiology, Neurology, and Biomedical Engineering, OHSU, President, Oregon Chapter, Society for Neuroscience, Founder & Chief Technical Officer, AMES, Technology Inc., Portland, OR.                        

                        Moderator: Robert Malone                      Assistant:  Joyce Kerley

Track 3:  Room D

Acquired Brain Injury—Return to Work

David Clemmons,  PhD, CRC - Senior Scientist and Psychologist, Director, Vocational Services, University of Washington Regional Epilepsy Center/Neurological Vocational Services

Moderator: Carol Chrisofero-Snider                    Assistant: John Parker

Track 4: Mt. Hood

            NIPBIA Board Meeting and Planning 

Alta Bruce-ND

10:30 a.m. - 10:45 a.m.  Atrium—Break

10:45 a.m. - 12:00 p.m.

Track 1: Room B

Community-based Rehabilitation following Traumatic Brain Injury

Andrew Ellis, PhD - Director, The Brain Injury Rehabilitation Center (BIRC), Portland OR, is a Clinical Psychologist with a specialty in Neuropsychology

            Moderator: Jeri Cohen               

            Assistant: Heidi Oliver

Track 2:  Room C

            The Impact of War on cases of TBI and family members

Iraq survivor and wife: Alec & Shana Giess

Vietnam survivor and wife: Randy Snider and Carol Christofero-Snider

                                    Moderator: Bill Olson                              Assistant:  Joyce Kerley

Track 3:  Room D

            Life Care Planning for Neurological Injuries

Wayne Eklund, RN CNLCP - President of the Brain Injury Association of Oregon

Janet Mott, PhD, LCP - Director of  Mott Rehabilitation, WA

                                    Moderator: Frank Bocci                          Assistant: Jean Ellen Herzegh

1:30 p.m. - 2:30 p.m.

Track 1: Room B

Examining the short and long term needs of children with TBI:   This workshop presents data from the National Pediatric Trauma Registry (NPTR) on 35,954 children (B-19 yrs) who sustained traumatic brain injuries (TBI) in the United States. The data will be analyzed for the following variables: gender, age, cause of injury, place/time of occurrence of the injury event, functional limitations at discharge, service referral at discharge, and severity of the brain injury .In addition, the long term impact of TBI on continued neurological development will be examined through SPECT and PET scan technology as to the potential challenges children experience as they get older. Lastly, a vector formula will be presented that allows families and caregivers to better predict the long term needs of children with TBI.

Ron Savage, EdD: TBI Rehabilitation, Education & Case Management Services, Haddonfield, NJ , past special educator and Professor of Education at Castleton State College, Clinical Professor of Neurology at the University of Medicine and Dentistry of New Jersey

                                    Moderator:  Sharon Maynard                   Assistant:  Aleyna Reed

Track 2:  Room C

            Best Clinical Practices in Rehab - email - teach em

Laurie Ehlhardt, Ph.D., CCC-SLP, Project  Manager, Think and Link, Communication Disorders and Sciences, University of Oregon

                                    Moderator: Dr. Tom Boyd                       Assistant:  Carol Chrisofero-Snider

• BIAOR Conf 9-30-05 (LE&RL).ppt

Track 3:  Room D

For Continuing TBI Education for Rural Health Professionals—Telehealth Idaho Virtual Grand Rounds : Telehealth reflects an efficient way to provide education to providers, state agency personnel, individuals with brain injury and family members.  Dissemination of health information via technology represents a major stride in healthcare, particularly in rural areas where providers are scarce and facilities are miles away.  This presentation will discuss the results of Idaho’s TBI virtual grand round series and the use of distance technology as a way of providing continuing education in a rural state.

            Russ Spearman, M. Ed - Idaho TBI Project Director, former Executive director for the Governor’s Council on Developmental Disabilities.

                                    Moderator: Wayne Eklund                                               Assistant:  Jean Ellen Herzegh

2:45 p.m. - 3:45 p.m.

Track 1: Room B

Pediatric Traumatic Brain Injury

            Janice Cockrell, MD -Medical Director, Pediatric Development & Rehabilitation, Emanuel Children’s Hospital, Portland, OR

                                    Moderator: Frank Bocci                          Assistant:  Aleyna Reed

• Pediatric_Traumatic_Brain_Injury (PPT)

Track 2:  Room C

            Best Clinical Practices in Rehab continued

Track 3:  Room D

            Behavioral Modification and TBI

Mark Tilson, PhD -  Neuropsychologist, Rehabilitation Institute of Oregon, Legacy Good Samaritan Hospital and Medical Center, Portland, OR.  Dr. Tilson specializes  in neuropsychological assessments, rehabilitation & geriatric psychology, TBI and stoke rehabilitation, cognitive-behavioral depression treatment and stress management.

 

                                    Moderator: Jean Ellen Herzegh               Assistant: Debbie Alexander

• COPING_STRATEGIES_FOR_CAREGIVERS_OF_PERSONS_WITH_CHRONIC_ILLNESS_OR_DISABILITY

• COPING_WITH_DEPRESSION_AND_CONTROLLING_YOUR_MOOD

• WHAT_FAMILIES_CAN_DO_FOR_BRAIN_INJURY_SURVIVORS

Track 4: Mt. Hood

            The Brain Injury Recovery Kit (BIRK)– A positive approach to a devastating change, Day-Timers, along with a dozen TBI survivors over the last ten years, has developed an innovative system for guiding individuals through the day-to-day challenges faced after brain injury, while providing information and support to family and fiends.  BIRK is a patented, innovative 5-step system that provides educational resources, strategies, and tools for the daily challenges unique to brain injury. A hands on demonstration of a new product that has been desperately needed. 

            Sherry Stock, MS, Director, Brain Injury Association of Oregon   

                                    Moderator: Jeri Cohen                            Assistant: Heidi Oliver

3:45 p.m. - 4:00  p.m.   Atrium—Break

4:00 p.m. - 5:00 p.m.

Track 1: Room B

Back to School and Beyond: Identification and Outcomes of Students with Traumatic Brain Injury in Public Schools --   Each year, 30,000 children and youth are left with long-lasting, significant alterations in social behavioral, physical, and cognitive functioning as a result of traumatic brain injury (TBI). However, identification of students with TBI for special education services lags far behind the incidence figures, resulting in TBI being classified as a “low-incidence” disability. Under-identification of these students results in a cycle of under-funding, inadequate service, and continued lack of educator training that further perpetuates these problems. In this presentation we will describe findings from two projects that are tracking students with TBI, one from hospital discharge back into schools and the other from schools through post-secondary transition, to examine the extent to which students with TBI are under-identified, the factors that influence under-identification, and how effective special education services are for these individuals.

            Ann Glang, PhD: Teaching Research Institute

                                    Moderator:  Wayne Eklund                      Assistant:  Aleyna Reed

Track 2:  Room C

            Best Clinical Practices in Rehab - continued

Track 3:  Room D

Male versus Female --Coping after Traumatic Brain Injury -  Is there a difference?  

Panel: Mark Tilson, PhD -  Neuropsychologist, Rehabilitation Institute of Oregon, Legacy Good Samaritan Hospital and Medical Center, Portland

Jane Starbird, PhD– Clinical psychologist in private practice, specializing in  working with people with disabilities , particularly those with head and spinal cord injuries.  Dr. Starbird facilitates Brainstormers 1, a monthly Portland Support Group for Women.

                        Moderator: Dr. Tom Boyd                       Assistant:  Joyce Kerley

Saturday

8:00 a.m. - 9:15 a.m.

Room C & D

Keynote Speaker - PJ Long, author of Gifts from the Broken Jar, was a psychotherapist in private practice, an adjunct college professor, and a consultant, when she sustained a TBI from a horse. She holds dual masters degrees, in interpersonal communication and psychology .  Seasons of Healing
 

9:40 a.m. - 10:00 a.m. 

            Book Signing with PJ Long, author of Gifts from the Broken Jar

Signed Books can be purchased from the BIAOR office

Information from PJ Long

• Grand Central Station  OK hand out

• Meal Delivery Handout

• OKLA handout Treatment of TBI Survivors

• OKLA strategies handout BOAS

• PJ order for handouts

• T Grand Central Station

• Time and Energy tips

10:00 a.m. - 11:00a.m.

Track 1: Room B

Psycho-pharmacological approaches to neuro behavioral impairments following Acquired Brain Injury

Nathan Zasler, MD, FAAPM&R, RAADEP, CIME, DAAPM - CEO/ Medical Director of the Concussion Care Centre of Virginia, an outpatient neurorehabilitation practice, and, Tree of Life, a living assistance and transitional rehabilitation program for persons with acquired brain injury in Glen Allen, Virginia.

                        Moderator: Dr. Danielle Erb                    Assistant:  Aleyna Reed

• PSYCHOPHARM (PPT)

• psychopharmacology

Track 2:  Room C

Job Issues and the Latest Techniques on Job Training

David Clemmons,  PhD, CRC - Senior Scientist and Psychologist, Director, Vocational Services, University of Washington Regional Epilepsy Center/Neurological Vocational Services

                                    Moderator: Bob Malone                          Assistant:  Terry Johnson

Track 3:  Room D

Community-based Rehabilitation following TBI

Jan Johnson, MS, Program Coordinator, Community Rehabilitation Services of Oregon

Doug Peterson, MS, CCC-SLP, Program Specialist, Progressive Rehabilitation Associates

Jeri Cohen, Survivor, Biaor Board Member

                                    Moderator: Carol Chrisofero-Snider          Assistant:  John Parker             

Track 4: Mt. Hood

NIPBIA Board meeting  – continued

11:00 a.m.. - 11:30  a.m.   Atrium—Break

11:30 a.m. - 12:30 a.m.

Track 1: Room B

Emotions: Cancer or Cure?

RD Mitchell, PhD, D.Min,HP - CA -

                        Moderator: Jean Ellen Herzegh               Assistant:  Heidi Oliver

Track 2:  Room C

Concerns and Anticipated Challenges of Family Caregivers following BI

Carol Altman, Homeward Bound, Hillsboro, OR; Valerie Wootten, Washington TBI Advisory Council

                        Moderator: Dr. Tom Boyd                       Assistant:  Joyce Kerley

Track 3:  Room D

Round table- Therapeutic Recreational Activities

Therapeutic Riding -- Carrie Perry

The Role of Art Therapy in Rehabilitation - Bittin Duggan

• Collected.Insights

• Mourning.is.essential

• Multiple.Intelligences

• Resources

• Ten.Rules.bring.human

• Time.for.Art.therapy.TBI

• What.is.Art.Therapy
   

Music and Brain Injury -  Skyhawk

                        Moderator: Dr. Danielle Erb                    Assistant:  Aleyna Reed

 Track 4: Mt. Hood

NIPBIA Board meeting  – continued

2:00 p.m. - 2:45 p.m.

Track 1: Room B

Examining the short and long term needs of children with TBI:   This workshop presents data from the National Pediatric Trauma Registry (NPTR) on 35,954 children (B-19 yrs) who sustained traumatic brain injuries (TBI) in the United States. The data will be analyzed for the following variables: gender, age, cause of injury, place/time of occurrence of the injury event, functional limitations at discharge, service referral at discharge, and severity of the brain injury .In addition, the long term impact of TBI on continued neurological development will be examined through SPECT and PET scan technology as to the potential challenges children experience as they get older. Lastly, a vector formula will be presented that allows families and caregivers to better predict the long term needs of children with TBI.

Ron Savage, EdD: TBI Rehabilitation, Education & Case Management Services, Haddonfield, NJ , past special educator and Professor of Education at Castleton State College, Clinical Professor of Neurology at the University of Medicine and Dentistry of New Jersey

                                                Moderator:  Wayne Eklund          Assistant:  Aleyna Reed

Track 2:  Room C

Family Care/Adjustment -The Experiences of Couples

Multiple Family Group Work with Couples Where a Member Has a Brain Injury -Survivors and family members talking -  including WA board members (Mike and Dana Lough) married after BI  and  PRA-BIRC alumni (Jamie and Justin Waltz).

                       Moderator: Carol Chrisofero-Snider          Assistant: Linda Hay
 

• Surviving & Thriving After Brain Injury - Sept. 2005.pdf

Track 3:  Room D

Designing Tools Useful for People with Brain Injury: The Latest & Greatest - The goal of this talk is to update participants about current research in cognitive rehabilitation. Participants will learn about current assistive technology projects devoted to improving community integration for people with brain injury. The Participatory Action Research Model that ensures that researchers partner with the people who will ultimately benefit from their work will be reviewed.  Several email and community navigation tools that have been developed using this model will be shared. Participants will have an opportunity to provide input into a the design of a trip preparation tool intended for people with memory impairments.

McKay Moore Sohlberg, PhD, Associate Professor, Communication Disorders and Sciences program, University of Oregon, and widely known for her pioneering work in the field of cognitive rehabilitation, she has worked as a clinician, researcher and administrator in the development of programs to assist individuals with brain injury to reintegrate into the community at maximal levels of independence.

                                                Moderator: Bob Malone              Assistant: Cortnie Haun
 

• Biaor05-McKay.ppt
   

Track 4: Mt. Hood

Meet the Author and Musicians- Book Signing with PJ Long, author of Gifts from the Broken Jar, Skyhawk, and others.

2:45 p.m. - 3:00  p.m.   Atrium—Break

3:00 p.m. - 3:45 p.m.

Track 1: Room B

Alternative/complementary – Yoga- interactive session

Track 2:  Room C

Community - Client Rehabilitation—ElderHeath Northwest

Nora Gibson, Executive Director, Northwest Elder Health, WA;

Long Term TBI Rehabilitation/Utilizing the Model of Interdependence, Inclusion, and Self Determination - Describing the Model and how it is utilized at Cognitive Enhancement Center.

Brad Loftis, Cognitive Enhancement Center, OR

                                    Moderator:  Wayne Eklund                      Assistant: Joyce Kerley

Track 3:  Room D

The Brain Injury Recovery Kit (BIRK)– A positive approach to a devastating change, Day-Timers, along with a dozen TBI survivors over the last ten years, has developed an innovative system for guiding individuals through the day-to-day challenges faced after brain injury, while providing information and support to family and fiends.  BIRK is a patented, innovative 5-step system that provides educational resources, strategies, and tools for the daily challenges unique to brain injury. A hands on demonstration of a new product that has been desperately needed. 

            Sherry Stock, MS, Director, Brain Injury Association of Oregon

                                    Moderator: Jeri Cohen                            Assistant: Heidi Oliver

3:45 p.m. - 4:00  p.m.   Atrium—Break

4:00 p.m. - 5:00 p.m.

Track 1: Room B

            Alternative/complementary - continued

Track 2:  Room C

Management of Sexuality

Elizabeth McNeff, MS, PSU

                        Moderator: Dr. Tom Boyd                       Assistant: Joyce Kerley

Track 3:  Room D

Creating memory books-scrapbooks - a family activity—Creative Memories has done research with the Alzheimer’s Association on the benefits of creating albums for retaining memories and connecting with caregivers.  She believes this same research parallels with helping others who work with or suffer from other forms of brain injury. 

Abby Nartker, Creative Memories Unit Leader and Administrator/Owner of Greenstone Montessori School. 

                        Moderator:  Sherry Stock                        Assistant: Heidi Oliver