resources - State and National
Children Cultural Competence
Defense and Veterans' issues
& Vocational Rehabilitation of People with TBI General brain injury information, advocacy, and support
Housing and residential placement Management of TBI for clinicians Medicaid
Public agencies in Oregon Screening and assessment
Subtle Brain Injury
Brain Injury Permanency from Concussion
- Does Concussion involve permanent brain damage? It
- Does Concussion disable? Often, but usually not for
- Will I get better? In all likelihood.
- If I don't have a full recovery, is it because I am nuts?
- Why is it that some people continue to have persisting
problems? That is what this intro is about.
Far too much of the focus in the study of what the researchers
always call "mild" brain injury, is trying to predict how serious a
brain injury will become, based upon the way in which the patient
interacts with medical professionals in the acute stage. This misses
the point. Certainly, if there was no concussion, there isn't likely
to be a brain injury. But once there has been a concussion, the
focus should not be on categorizing how serious the concussion was,
but on what deficits the person is left with, after a healing
period, and what we can do to minimize the disruption of those
deficits upon this person's life.
Why do some people have apparent full recoveries, while others,
are profoundly affected by a similar injury? To begin this
discussion, we must summarize our theory of the pathology of subtle
Understanding Subtle Brain Injury
- Diffuse Axonal Injury. Concussion results
in organic injury to the brain, in most cases, by the mechanism
of diffuse axonal injury.
- Process not an Event. This injury is more
likely as a result of strain to axons than actual tearing, which
over a period of 12-72 hours results in a cascade of events
which can disrupt a significant number of neural connections,
either because of the death or damage to the axons which connect
the neuron bodies.
- Regeneration isn't Total Recovery. Our
current research into neuropathology indicates that significant
regeneration of these neural connections can occur, but that the
extent of such regeneration falls off considerably with age
(with over 40 being a meaningful line of demarcation) and that
the regenerated neural connections are less efficient than
- High Achiever Problems. For this reason,
individuals in professions which place a high demand on
processing speed, are more likely to experience deficits than
others, and that most people who have suffered more than a Grade
I concussion, will have some measurable deficits, if sufficient
demands are made upon their brains.
There is an overwhelming ignorance in the medical community that
there is even the possibility of permanent brain injury in patients
who may have suffered a concussion. To this day, a significant
proportion of the medical community believes that there can be no
permanent brain injury without a loss of consciousness or without a
blow to the head. Perhaps more important, there is a poor
understanding that brain injury symptoms may escalate after the
first couple of hours. Likewise, there is far too much confidence
put in our ability to rule out brain injury through the use of CT
and MRI. This page will focus first on the diagnostic issues and
then move on to the subtle symptomatology that underlies these types
of brain injuries.
Following are links to State and National Associations
and Agencies to help in understanding, living with, and treating
- Agency/organization websites
- National Dissemination Center for
Children with Disabilities
- Oregon Department of Special Education
Family & Commnunity Together (FACT) Oregon
Helps connect parents of children with disabilities or complex health care needs with parent mentors who provide emotional support, doctor recommendations and information on local resources. FACT’s Parent Training and Information Center provides information for parents of children and youth with disabilities. Call 1-888-988-3228 for more information about special education.
- Documents/training materials
- Additional Information and websites
Homeschooling and Special Needs Children
College Assistance Guide for People with ADHD
Disability.gov’s Guide for Family Caregivers
How Caregivers Can Take Better Care of
Obesity and Children with Special Needs
A Safety Guide for Disabled Pedestrians
A New Savings Plan for the Disabled
A Guide for Disabled Homebuyers
A comprehensive guide to home adaptations for disabled people.
Financial Assistance for Accessibility Home
Repairs and Modifications
Home Accessibility Costs
General brain injury information, advocacy,
- Agency/organization websites
- ADRC of Oregon
Consumer web site, resource database, and integrated call module for consumers and for the Information and Referral/Assistance staff
Brain Injury Alliance of
Meetings by appointment only: PO Box 549, Molalla OR 97038 (800) 544-5243 (503) 740-3155 fax: 503-961-8730
Brain Injury Alliance Washington
Mailing Address: P.O. Box 3044
Seattle, WA 98114
Toll Free: 877-982-4292
Office: 206.467.4800; Toll-Free 877.98BIAWA (877.982.4292)
Visit www.biawa.org or email
Brain Injury Association of Colorado
1385 South Colorado Boulevard, Suite 606, Building A, Denver, CO 80222 (303) 355-9969 Toll-Free: (800) 955-2443
Brain Injury Association of Idaho
1055 North Curtis Road, Boise, ID 83706
Ph:(208) 367-2747 Family Helpline: (800) 444-6443
Alaska Brain Injury Network
3745 Community Park Loop #140,
Anchorage, Alaska 99508
office: 907 274-2824
fax: 907 274-2826
United States Brain Injury Alliance (USBIA)
Brain Injury Association of America
- Center for Neuro Skills(CNS)
- Commission on Accreditation of
Rehabilitation Facilities (CARF)
- Department of Health and Human
Services, Health Resources and Services Administration,
Maternal and Child Health Bureau (HRSA-MCHB) - Traumatic
Brain Injury Program
- Disability Rights Oregon
- Protection and Advocacy
This site is a non-profit
organization that provides legal advocacy to people in Oregon with
disabilities. It is not a part of the state or federal government,
but is designated as the protection and advocacy system for Oregon.
Head Injury Prevention -
A rundown on risks and prevention of head injury in youth sports.
- National Resource Center for Traumatic
- National Association of State Head
Injury Administrators (NASHIA)
- Neuroscience for
National Institute of
Neurological Disorders and Stroke
National Family Caregivers Association
is a grass roots organization created to educate, support, empower
and speak up for the millions of Americans who care for chronically
ill, aged or disabled loved ones.
- Documents/training materials
- Medicaid Services
- Oregon State Health Resources -
- Medicaid - what is it and what
does it cover
Medicaid provides health coverage for low-income children
and adults, medical and long-term care coverage for people
with disabilities, and assistance with health and long-term
care expenses for low-income seniors. More than 58 million
people rely on Medicaid services.
- Report on
Language Services for Medicaid and CHIP Enrollees
The National Health Law Program released the report
How Can States Get Federal
Funds to Help Pay for Language Services for Medicaid and
CHIP Enrollees?, a resource to assist States in
evaluating best practices for setting up language services
reimbursement. The report details Federal funding available
to States to pay for language services and describes
technical requirements that vary from State to State.
This report answers a variety of relevant
What are Medicaid and the State
Children's Health Insurance
How does the Federal government pay its share of Medicaid
and CHIP costs to the States?
Why can States get (draw down) Federal reimbursement for
Why don’t all States cover language services for Medicaid/
How much would my State get from the Federal government for
How does my State start drawing down Federal reimbursement
for language services?
Which providers can get reimbursed for language services?
How can my State reimburse providers who receive pre-set
rates for service?
How much should the State pay for interpreters?
How can States offer reimbursement?
What about language services for individuals not enrolled in
To read the full report, visit <http://www.familiesusa.org/assets/pdfs/How_Can_States_Get_Medicaid_and_CHIP_for_Language_Services.pdf>
For specific information on your State, visit <http://www.statehealthfacts.kff.org/>
- Public agencies in Oregon
- Agency/organization websites
- Social Security
- Agency/organization websites
- The Social Security and Disability Resource Center website (SSDRC.com)
provides a detailed overview of how the federal disability system works (social security disability and SSI) and also provides answers to many questions that applicants typically have, but often have trouble finding answers to. For the most part, the site is based on the author's personal experience as a former disability-medicaid caseworker, and also as a former disability examiner for the social security administration. Hopefully, the information will be helpful to some of your site's visitors.
Real Warriors Campaign
Find articles and resources on a variety of psychological
health issues, as well as video interviews with Service
Members, their families and others dealing with mental
health issues and traumatic brain injuries.
Outreach Center for Psychological Health & Traumatic Brain
Contact the 24-hour/7 days a week outreach center at
866-966-1020 to reach the
Defense Centers of Excellence for Psychological Health and
Traumatic Brain Injury (DCoE).
Defense Centers of Excellence (DCoE) for Psychological Health &
Traumatic Brain Injury
Access a DoD program that works to improve psychological
health and TBI treatment of Service Members and Veterans.
Traumatic Brain Injury (TBI)
Find information on the causes, symptoms,
classifications, recommendations and resources from
Hooah 4 Health regarding TBI.
Helping Soldiers with TBI to Recover & Reintegrate
Learn about the program,
Project Victory, that helps Service Members who have
sustained a mild to severe brain injury to regain skills and
functions that were lost through their injury.
National Council on Disability - Report on the Invisible Wounds
of TBI & PTSD
Describes the less visible psychological and neurological
injuries associated with post traumatic stress disorder
(PTSD) or traumatic brain injury (TBI). Download a report
Invisible Wounds: Serving Service Members and Veterans with
PTSD and TBI.
Traumatic Brain Injury - The Journey Home
Provides an informative and sensitive exploration of
Traumatic Brain Injury (TBI), including information for
patients, family members and caregivers. Topics include
types and symptoms of brain injury, TBI treatment and
recovery, and helpful insights about the potential long-term
effects of brain injury.
Brain Injury Network
Provides advocacy, information and referral, peer support,
and resources for survivors of acquired brain injury (abi),
which includes traumatic brain injury (tbi), stroke, brain
illness and brain tumors.
Blast Injury FAQs
Offers answers to frequently asked questions about blast
injuries provided by the
Defense & Veterans Brain Injury Center (DVBIC).
Resources for Veterans & Their Families on Traumatic Brain
Get information from the
National Association of State Head Injury Administrators
on TBI, including state, local and federal resources.
Bob Woodruff Foundation
Provides resources and support to injured Service Members,
Veterans and their families, especially those who have
sustained the hidden injuries of war.
Rehabilitation Research & Training Center (RRTC) on Community
Integration of Persons with Traumatic Brain Injury (TBI)
Provides information and resources to help people affected
by TBI, their families and professionals who work with and
treat them in order to maximize their access to services and
their participation in their communities.
Traumatic Brain Injury (TBI) & Stroke Rehabilitation (TSR)
Provides easy access to the most current information about
NICHD research projects, publications, news releases and
other activities related to TBI and TSR and similar
American Veterans with Brain Injuries (AVBI)
Offers personal stories, resources and announcements of
services available to Veterans with traumatic brain injury
and their families.
Employment after Traumatic Brain Injury (TBI)
Learn about research and expectations regarding post-TBI
Healthcare for Headaches
Provides educational and informational resources supporting
headache research and treatment. The website provide
articles that link headaches to TBI and PTSD.
Betty Clooney Foundation for Persons with Traumatic Brain Injury
Provides resources in finding the right treatment,
therapy and rehabilitation for patients with TBI. Includes
Soldiers & TBI,
services available at their facility in Southern
California and a listing of
Support Groups in California.
Answers for Veteran or Active Military with Paralysis or Brain
Learn about resources available from the Christopher and
Dana Reeve Foundation Paralysis Resource Center, the Defense
and Veterans Brain Injury Center and the Brain Injury
Association of America to enhance the care of people with
paralysis and traumatic brain injury.
National Institute of Neurological Disorders & Stroke (NINDS)
Traumatic Brain Injury (TBI) Information Page
that can help people live with TBI.
Improved Treatment for Stuttering
Provides free online resources, services and support to
those who stutter and their families, as well as support for
research into the causes of stuttering.
Army Behavioral Health
Learn about post-traumatic stress disorder (PTSD),
traumatic brain injury (TBI) and suicide prevention.
Includes help for
children, couples and extended families.
Understanding Traumatic Brain Injury (TBI)
Watch a video from the
Defense & Veterans Brain Injury Center features the
recovery journeys of several service personnel and their
Traumatic Brain Injury Resource Directory (TBIRD)
Produced by the Rehabilitation Research Center at Santa
Clara Valley Medical Center that provides information and
resources available on a range of topics related to TBI.
The National Center for Telehealth and Technology (T2)
Researches, develops, evaluates, and deploys new and
existing technologies for Psychological Health (PH) and
Traumatic Brain Injury (TBI) across the Department of
Understanding Brain Injury - A Guide for the Family
The Brain Injury News and Information Blog
is dedicated to providing the latest news on
brain injury and is designed to be a valuable resource for
professionals, persons who have sustained a brain injury and family
members. New developments in medicine, legislation, law, sports,
events, meetings and injury prevention are reported on a daily
The Neurology Channel
The Perspectives Network
focus is positive communication between persons with brain injury,
family members/caregivers/friends of persons with brain injury,
those many professionals who treat persons with brain injury and
community members in order to create positive changes and enhance
public awareness and knowledge of acquired/traumatic brain injury."
Waiting during Coma
This site Is
made possible through the contributions of those whose lives have
been touched and changed by brain injury. We thank them for sharing