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Links and Resources

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Brain Injury 101 (video)
Difficulties After Brain Injury
Brain Injury Studies and Research
Publications to Download 



General Brain Injury Information

Understanding Brain Injury (Video Series)

Brain Injury FAQs -

Traumatic Brain Injury Central -

National Resource Center for Traumatic Brain Injury -

Brain Injury Resource Center -

Traumatic Brain Injury Survival Guide -

Facts about Traumatic Brain Injury -

Traumatic Brain Injury Resource Directory -

COMPASS’ Brain Injury Website -

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Difficulties After Brain Injury

Substance Abuse and TBI -

Oregon Gambling Treatment Program -

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American Psychological Association – Division of Clinical Neuropsychology -

American Board of Clinical Neuropsychology -

Neuropsychology and Brain Injury -

Neuropsychology Central -

International Neuropsychological Society -

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Brain Injury Studies and Research

Traumatic Brain Injury (TBI) National Data and Statistical Center: The coordinating center for the TBI National Data and Statistical Center website is Craig Hospital. The primary purpose of the TBINDSC is to advance medical rehabilitation by increasing the rigor and efficiency of scientific efforts to longitudinally assess the experience of individuals with traumatic brain injury (TBI). The TBI National Data and Statistical Center

Model Systems Knowledge Translation Center (MSKTC): The coordinating center for the MSKTC website is the University of Washington. MSKTC is a national center that works to put research into practice to serve the needs of people with traumatic brain injuries (TBI), spinal cord injuries (SCI), and burn injuries (Burn).

The Center for Outcome Measurement in Brain Injury (COMBI): COMBI is an online resource for those needing detailed information and support in regards to outcome measures for brain injuries. The COMBI website is being coordinated by Santa Clara Valley Medical Center

NIH Consensus Development Program, Rehabilitation of Persons with Traumatic Brain Injury -

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Publications to Download

General TBI Information
How to Help Someone Who Has a Brain Injury (PDF)
Facts About Concussion and Brain Injury (PDF)
Helmet Safety – Brain Injury Association of Minnesota
Traumatic Brain Injury National Data and Statistical Center
Communication Tips

Understanding TBI
Understanding Pediatric Brain Injury: Guide for Parents and Educators
Understanding Brain Injury: Guide for Employers
Understanding Brain Injury: Guide for Family
New Jersey Guide for School Nurses
New Jersey Guide for Families About School
New Jersey Guide for Educators
Making Life Work After A Brain Injury: A Family Guide for Life at Home

Behavioral Problems After a Brain Injury
Anger Management Issues
Behavioral Challenges after Brain Injury
Behavioral Considerations in TBI Rehabilitation
Depression After Brain Injury
Guidelines for Treatment of Neurobehavioral Problems
Interventions for Behavioral Problems after Brain Injury
Medications and Behavior
Neuroanatomy of Behavior After Brain Injury
School Integration-Addressing Behavioral Needs of Students Following Brain Injury
Substance Abuse and TBI
TBI and Behavioral Issues
The Effects of Alcohol on your Skin

Spinal Cord Injury - Skin Care & Pressure Sores (Seven-part series)
Part 1: Causes and Risks
Part 2: Preventing Pressure Sores
How to do Pressure Reliefs (Weight Shifts)
Building Skin Tolerance for Pressure
Areas of the Body at High Risk for Pressure Sores
Part 3: Recognizing and Treating Pressure Sores
Supplement: Stages of Pressure Sores: Illustrations

Parte 1: Causas y riesgos de úlceras por presión
Parte 2: Cómo prevenir úlceras por presión
Suplemento: Cómo realizar alivios de presión (cambios de apoyo de peso)
Parte 3: Cómo reconocer y tratar las úlceras por presión
Suplemento: Etapas de úlceras por presión: Ilustraciones

Pain after Spinal Cord Injury (Two-part series)
Pain after Spinal Cord Injury
Supplement: Activity Modification for Musculoskeletal Pain

Dolor después de una lesión en la médula espinal
SUPLEMENTO: Modifi cación de actividad para dolor musculoesquelético
Depression and Spinal Cord Injury
Safe Transfer Technique

The Wheelchair Series: What the SCI Consumer Needs to Know (Three-part series)
Getting the Right Wheelchair
The Manual Wheelchair
The Power Wheelchair
Spasticity and Spinal Cord Injury
Employment after Spinal Cord Injury

Work Employment After Brain Injury

Falls 2002.Fact.Sheet.falls.pdf

Students Underachieving Students - This technical brief from the National Center for the Dissemination of Disability Research discusses research conducted at Mount Sinai, that focuses on identification, assessment, and classroom modifications for students who have experienced mild brain injury resulting in underachievement in school.

TBI Consumer Reports
ssue 1: Long-term Post-TBI Health Problems - Individuals with TBI experience some health problems much more often than people without a disability, for example, balance and sleep difficulties, urinary control problems, arthritis, as well as hair, skin, and body temperature changes. Suggestions are provided for dealing with these common health challenges.
Issue 2: Aerobic Exercise Following TBI - This TBI Consumer Report describes the many benefits experienced by people with TBI who engage in aerobic exercise (like running), including fewer sleep problems, fewer cognitive complaints and less depression. Suggestions are made for taking up or resuming aerobic exercise after TBI.
Issue 3: Parenting after TBI - Our research suggests that one of the few areas in which parents with long-term brain injury differ from non-disabled parents is in being somewhat more depressed and having children who are somewhat more depressed than in families that are not coping with TBI. Suggestions are made for parents to address this and other issues.
Issue 4: Coping with Post-TBI Emotional Distress - The results of our research suggest that depression is 10 times more likely for people with TBI, and anxiety is twice as likely for people with TBI as for people with no disability. This TBI Consumer Report focuses on steps individuals with TBI can take to alleviate depression and/or anxiety.
Issue 5: Coping with Sexual Problems after TBI - After TBI, commonly the individual's social and sexual behavior and his/her sexuality are affected — somewhat differently for men and women. This issue of TBI Consumer Report discusses approaches you can use to help address problems that affect establishing and maintaining a relationship with another person after TBI that is satisfying, sexually and emotionally.
Issue 6: Coping with Substance Abuse after TBI -This issue focuses on two aspects of substance abuse after TBI: first, the magnitude of the problem and why "staying clean" is important to people with TBI, and second, what can be done to help prevent and treat substance abuse after a person has had a TBI. This advice is based on "what worked" for people who shared with us their experiences in avoiding and coping with substance abuse.
Issue 7: Peer Mentoring - This issue of TBI Consumer Report describes how the TBI Mentoring Partnership Program works and initial data on its impact. The Report also discusses how similar peer mentoring programs might be established in other areas of the country.
Issue 8: Person-Centered Planning - This issue describes a method to plan for a better future that places the person with TBI at the center of planning. Person-centered planning can be done in community agencies that serve people with disabilities, or it can be done by an individual with a supportive group of friends and family.

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Brain Injury Alliance of Oregon -

Brain Injury Alliance of Washington -

National Association of State Head Injury Administrators -

National Center on Physical Activity and Disability -

National Aphasia Association -

National Headache Foundation -

Vestibular Disorders Association -

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Oregon & National RESOURCES

Assistive technology-Agency/organization websites
TBI Technical Assistance Center (TBI TAC)   Established in 1997 to help States in the planning and development of effective programs that improve access to health and other services for individuals with TBI and their families. TBI TAC supports the federal TBI Program, which is administered by the U. S. Department of Health and Human Services' Health Resources and Services Administration, Maternal and Child Health Bureau.  TBI TAC publications can be downloaded from this site.
Northwest ADA Information Center - Disability and Business Technical Assistance Center (DBTAC)

Children - Agency/organization websites

Oregon Department of Special Education
Oregon TBI Consulting Team  Consultants for schools and families to help students with brain injury.

ThinkFirst Oregon - part of a national non-profit organization working with teachers, educators and community groups to reduce the risk of brain and spinal cord injury through community education and outreach.

Documents/training materials
Students with Traumatic Brain Injury: Identification, Assessment, and Classroom Accommodations

Teaching Strategies for Students with Brain Injuries
Back to School [After a TBI]

Underachieving Students - This technical brief from the National Center for the Dissemination of Disability Research discusses research conducted at Mount Sinai, that focuses on identification, assessment, and classroom modifications for students who have experienced mild brain injury resulting in underachievement in school.

Cultural Competence

National Center for Cultural Competence

National Library of Medicine – Asian American Health

National Library of Medicine – American Indian Health

Documents/training materials
Minnesota Department of Human Services – Guidelines for Culturally Competent Organizations

Defense and Veterans' issues - Agency/organization websites

Defense and Veterans Brain Injury Center
Fort Oregon  national multimedia project offering information and resources about preventing, treating, and living with TBI; includes a series of webcasts

Military HOMEFRONT is the central source for Service members and families to obtain information about all Quality of Life programs and services

Military Severely Injured Joint Support Operations Center (MSIJSOC)

Documents/training materials
Veterans Health Benefits 101 for TBI Advocates,” Archived webcast, Maternal and Child Health Bureau (MCHB) of the Department of the US Department of Health and Human Services, Health Resources and Services Administration

Employment and Vocational Rehabilitation of People with TBI - Agency/organization websites

Oregon Vocational Rehabilitation Services - Provides rehabilitation services to persons with disabilities and makes eligibility decisions for disability benefits

Work Incentive Network

Documents/training materials
“Job Accommodation Network – Work-site Accommodation Ideas for Persons with Brain Injury

Traumatic Brain Injury Facts: Vocational Rehabilitation and Employment Services

Guide to State Government Brain Injury Policies, Funding and Services: Vocational Rehabilitation, National Association of State Head Injury Administrators 2003

General brain injury information, advocacy, and support  - Agency/organization websites
ADRC of Oregon
  Consumer web site, resource database, and integrated call module for consumers and for the Information and Referral/Assistance staff

Brain Injury Alliance of Oregon (BIAOR)  Office-by appointment only:  PO Box 549, Molalla OR 97038 (800) 544-5243 (503) 740-3155 fax: 503-961-8730 e-mail:

Brain Injury Alliance Washington  Office: 401 Broadway, Patricia Steel Building - 4th Floor, Seattle, WA 98122  (206) 897-5755, Toll free 877-98-BIAWA (877-982-4292), FAX (206) 897-5756. Mailing Address: P.O. Box 3044, Seattle, WA 98114

Brain Injury Alliance of Colorado 4200 West Conejos Place #524 Denver, CO 80204 (303) 355-9969 Toll-Free: (800) 955-2443

Brain Injury Alliance of Idaho  1055 North Curtis Road, Boise, ID 83706 Ph:(208) 367-2747 Family Helpline: (800) 444-6443 email:

Alaska Brain Injury Network 3745 Community Park Loop #140, Anchorage, Alaska 99508 office: 907 274-2824 fax: 907 274-2826

Center for Neuro Skills(CNS)

Commission on Accreditation of Rehabilitation Facilities (CARF)

Department of Health and Human Services, Health Resources and Services Administration, Maternal and Child Health Bureau (HRSA-MCHB) - Traumatic Brain Injury Program

Disability Rights Oregon -  Protection and Advocacy Service (DRO)
This site is a non-profit organization that provides legal advocacy to people in Oregon with disabilities. It is not a part of the state or federal government, but is designated as the protection and advocacy system for Oregon.

Head Injury Prevention - A rundown on risks and prevention of head injury in youth sports.

National Resource Center for Traumatic Brain Injury

National Association of State Head Injury Administrators (NASHIA)

Neuroscience for Kids

NINDS National Institute of Neurological Disorders and Stroke

National Family Caregivers Association NFCA is a grass roots organization created to educate, support, empower and speak up for the millions of Americans who care for chronically ill, aged or disabled loved ones.

National Information Rehabilitation Center (NARIC)
The University of Washington Traumatic Brain Injury System (TBIMS)

Traumatic Brain Injury Central

TBI Resources -

Vestibular Disorders Association

Waiting during Coma  This site Is made possible through the contributions of those whose lives have been touched and changed by brain injury. We thank them for sharing their stories.

Documents/training materials

Archived webcasts of the HRSA-MCHB (click on ‘Archived webcasts’, then ‘TBI’)

TBI Consumer Reports: A published series that summarizes research conducted at Mount Sinai School of Medicine, appropriate for consumers, family members, and service providers

TBI Chat Room - A place to chat online with others affected by brain injury or their caregivers.

TBI Media Resources on Idaho Virtual TBI Program Center

Housing and residential placement
Agency/organization websites

Oregon State independent Living Council (SILC)

Oregon Centers for Independent Living

Oregon Department of Human and Human Services, Seniors and People with Disabilities (SPD)

Habitat for Humanity

National Association of Area Agencies on Aging

Oregon Area Agencies on Aging Directory

Oregon DHS, Housing and Transportation

Department of Human Services, Statewide Search for Adult Foster Homes

Oregon Home and Community Based Waiver Services

USDA Rural Development

Office of the State Long Term Care Ombudsman (LTCO)
The LTCO has volunteer ombudsmen in many of the nursing and adult foster care facilities throughout Oregon. Each facility should have a large poster with the name and telephone number of the ombudsman assigned. If there is none, contact the LTCO Salem office to get information about and/or solve any problem within a facility.

Oregon Housing and Community Services

Oregon State Assistance and Resource Directory-Food, Cash, Housing

United States Department of Housing and Urban Development – Information for People with Disabilities

Management of TBI for clinicians
Documents/training materials

Brain Facts  The Primer of the Brain and Nervous System

Centers for Disease Control and Prevention - "Heads Up: Brain Injury in Your Practice Tool Kit" (available to order, free of charge)

Veterans Health Initiative - Traumatic Brain Injury, Independent Study Course Released: January 2004

Neurotrauma Registry Neurotrauma Registry provides a web-based resource list free of charge for individuals who have acquired brain injury, spinal cord injury, or other complex neurotrauma.

Neuroland  This site provides Neurology information for physicians and health care professionals. It also provides links to resources for patients, families, and people without a medical background.

Virtual Hospital ® is a registered trademark of The University of Iowa
The Virtual Hospital is a digital health sciences library created in 1992 at the University of Iowa to help meet the information needs of health care providers and patients. It's goal is to make the Internet a useful medical reference and health promotion tool for health care providers and patients. The library contains hundreds of books and brochures for health care providers and patients.  This site containsAcute Brain Injury - A Guide for Families and Friendsin full text.

TBI Media Resources on Idaho Virtual TBI Program Center

Medicaid Services
Medicaid - what is it and what does it cover
Medicaid provides health coverage for low-income children and adults, medical and long-term care coverage for people with disabilities, and assistance with health and long-term care expenses for low-income seniors. More than 58 million people rely on Medicaid services.

Report on Language Services for Medicaid and CHIP Enrollees The National Health Law Program released the report How Can States Get Federal Funds to Help Pay for Language Services for Medicaid and CHIP Enrollees?, a resource to assist States in evaluating best practices for setting up language services reimbursement. The report details Federal funding available to States to pay for language services and describes technical requirements that vary from State to State.  To read the full report, visit

 For specific information on your State, visit

Public agencies in Oregon Agency/organization websites

Department of Human Services (DHS) - Home

Department of Human Services – County Office Information

Oregon Public Health Division

Oregon Department of Special Education (ODE)

Oregon Office of Vocational Rehabilitation Services (OVRS)

Oregon OVRS offices - Locations by City

Oregon Community Mental Health Programs

Oregon Community Health Centers <

Screening and assessment

Agency/organization websites

The Center for Outcome Measurement in Brain Injury

Documents/training materials

Ohio Valley Center for Brain Injury Prevention and Rehabilitation – TBI Screening

Traumatic Brain Injury (TBI) Central: Brain Injury Screening

Social Security Disability Information  Agency/organization websites

The Social Security and Disability Resource Center website ( provides a detailed overview of how the federal disability system works (social security disability and SSI) and also provides answers to many questions that applicants typically have, but often have trouble finding answers to. For the most part, the site is based on the author's personal experience as a former disability-medicaid caseworker, and also as a former disability examiner for the social security administration. Hopefully, the information will be helpful to some of your site's visitors. offers articles and other content related to disability benefits and financial resources to over 1,000,000 unique visitors every year.

Statistics  Agency/organization websites

Centers for Disease Control and Prevention – Traumatic Brain Injury: Topic Home

Substance abuse Agency/organization websites

Ohio Valley Center for Brain Injury Prevention and Rehabilitation – Substance Abuse and Brain Injuries

Substance Abuse & Mental Health Services Administration – Substance Abuse Treatment Facility Locator

Documents/training materials

Aug 2010 Oregon Alcohol and Other Drug Services Directory

Veterans An image of a flag next to a resource denotes that it is a Government ResourceGovernment Resource

Real Warriors Campaign This is a government resource
Find articles and resources on a variety of psychological health issues, as well as video interviews with Service Members, their families and others dealing with mental health issues and traumatic brain injuries.

Outreach Center for Psychological Health & Traumatic Brain Injury This is a government resource
Contact the 24-hour/7 days a week outreach center at 866-966-1020 to reach the

Defense Centers of Excellence for Psychological Health and Traumatic Brain Injury (DCoE).

Defense Centers of Excellence (DCoE) for Psychological Health & Traumatic Brain Injury This is a government resource Access a DoD program that works to improve psychological health and TBI treatment of Service Members and Veterans.

Traumatic Brain Injury (TBI) This is a government resource Find information on the causes, symptoms, classifications, recommendations and resources from Hooah 4 Health regarding TBI.

Helping Soldiers with TBI to Recover & Reintegrate  Learn about the program, Project Victory, that helps Service Members who have sustained a mild to severe brain injury to regain skills and functions that were lost through their injury.

National Council on Disability - Report on the Invisible Wounds of TBI & PTSD This is a government resource  Describes the less visible psychological and neurological injuries associated with post traumatic stress disorder (PTSD) or traumatic brain injury (TBI). Download a report titled Invisible Wounds: Serving Service Members and Veterans with PTSD and TBI.

Traumatic Brain Injury - The Journey Home Provides an informative and sensitive exploration of Traumatic Brain Injury (TBI), including information for patients, family members and caregivers. Topics include types and symptoms of brain injury, TBI treatment and recovery, and helpful insights about the potential long-term effects of brain injury.

Brain Injury Network Provides advocacy, information and referral, peer support, and resources for survivors of acquired brain injury (abi), which includes traumatic brain injury (tbi), stroke, brain illness and brain tumors.

Blast Injury FAQs This is a government resource  Offers answers to frequently asked questions about blast injuries provided by the Defense & Veterans Brain Injury Center (DVBIC)

Resources for Veterans & Their Families on Traumatic Brain Injury
Get information from the National Association of State Head Injury Administrators on TBI, including state, local and federal resources.

Bob Woodruff Foundation Provides resources and support to injured Service Members, Veterans and their families, especially those who have sustained the hidden injuries of war.

Rehabilitation Research & Training Center (RRTC) on Community Integration of Persons with Traumatic Brain Injury (TBI) Provides information and resources to help people affected by TBI, their families and professionals who work with and treat them in order to maximize their access to services and their participation in their communities.

Traumatic Brain Injury (TBI) & Stroke Rehabilitation (TSR) Program This is a government resource Provides easy access to the most current information about NICHD research projects, publications, news releases and other activities related to TBI and TSR and similar disorders.

American Veterans with Brain Injuries (AVBI) Offers personal stories, resources and announcements of services available to Veterans with traumatic brain injury and their families.

Employment after Traumatic Brain Injury (TBI) Learn about research and expectations regarding post-TBI vocational outcomes.

Healthcare for Headaches Provides educational and informational resources supporting headache research and treatment. The website provide articles that link headaches to TBI and PTSD.

Betty Clooney Foundation for Persons with Traumatic Brain Injury (TBI)
Provides resources in finding the right treatment, therapy and rehabilitation for patients with TBI. Includes information on Soldiers & TBI, services available at their facility in Southern California and a listing of Support Groups in California.

Answers for Veteran or Active Military with Paralysis or Brain Injury Learn about resources available from the Christopher and Dana Reeve Foundation Paralysis Resource Center, the Defense and Veterans Brain Injury Center and the Brain Injury Association of America to enhance the care of people with paralysis and traumatic brain injury

National Institute of Neurological Disorders & Stroke (NINDS) Traumatic Brain Injury (TBI) Information Page This is a government resource Find organizations that can help people live with TBI.

Improved Treatment for Stuttering Provides free online resources, services and support to those who stutter and their families, as well as support for research into the causes of stuttering.

Army Behavioral Health This is a government resource  Learn about post-traumatic stress disorder (PTSD), traumatic brain injury (TBI) and suicide prevention. Includes help for children, couples and extended families.

Understanding Traumatic Brain Injury (TBI) This is a government resource  Watch a video from the Defense & Veterans Brain Injury Center features the recovery journeys of several service personnel and their families.

Traumatic Brain Injury Resource Directory (TBIRD) Produced by the Rehabilitation Research Center at Santa Clara Valley Medical Center that provides information and resources available on a range of topics related to TBI.

The National Center for Telehealth and Technology (T2) This is a government resource Researches, develops, evaluates, and deploys new and existing technologies for Psychological Health (PH) and Traumatic Brain Injury (TBI) across the Department of Defense (DoD).

Understanding Brain Injury - A Guide for the Family Explains the impact that a brain injury in one family member can have on the entire family. Contains information on the structure and function of the human brain; the causes of brain injury; the recovery process; and behavior and communication changes after brain injury.

Basic Facts about TBI Video  Watch a video from the Brain and Spinal Cord Injury Center provides a basic overview of TBI.

 Facts About Traumatic Brain Injury (TBI)

BrainLine Provides a variety of information and resources on traumatic brain injury (TBI).

War Related Illness and Injury Study Center (WRIISC) This is a government resource Provides information on Traumatic Brain Injury (TBI) from the Department of Veterans Affairs. 

For additional resources in your community visit

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The Waiting Room - Coma Support -
Brain Injury Information Network -
The TBI Chatroom and Homepage - or
The Perspectives Network -
The Brain Injury Ring -
B Independent -

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State of Oregon Home Page -
Department of Public Health -
Department of Education -
Department of Human Services -
Oregon Disabilities Commission -
Department of Aging Persons with Disabilities -
Oregon Vocational Rehabilitation Services -
Oregon Health Care Regulation and Quality Improvement program –
Oregon Legislature -
Oregon Administrative Rules -
Association of Oregon Counties -

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Alaska Brain Injury Network -
Brain Injury Association of Washington -
Brain Injury Association of Idaho –

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Federal Traumatic Brain Injury Program
The New Freedom Initiative for Americans with Disabilities –
The Americans with Disabilities Act -
CDC's Help Seniors Liver Better, Longer: Prevent Brain Injury -
U.S. Fall Prevention Program for Seniors -
Defense and Veterans Brain Injury Center Program
Federal Traumatic Brain Injury Program

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Google Search Engine -
National Library of Medicine -
National Library of Medicine: Bibliographies on Brain Injury (scroll down the page) –
HDI Publishers -

This resource was created to assist individuals with locating brain injury information on the World Wide Web (or Internet). Special focus was given to the location of information that would be relevant to people with brain injury and family members of people living with brain injury. From time to time the links on this page may become out-of-date.



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