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Brain Injury 101 (video)
 

General Brain Injury Information  http://www.buzzle.com/articles/brain-injury/

 

State Prescription Drug Program      Oregon Center for Children and Youth With Special Needs     Centers for Independent Living   Delayed Justice Can Be Denied Justice   Brain Injury Recovery Kit   Exercise and Brain Health Guide For Families    Home Based Cognitive Simulation  Stroke  Resource Links      Survivor Website & Blogs



Oregon Free Prescription Drug Program - save up to 45% on all prescriptions

 


Oregon Center for Children and Youth with Special Needs (CYSHN)

Family Support

A service, resource, or other assistance related to the care of a child with special health needs.

General Eligibility

n       Children birth to 21 years of age
n       Families must live in Oregon or pay Oregon income tax
n       Requests can be submitted through a representative of one of the Oregon Center for CYSHN Programs (CDRC specialty clinics, CaCoon, Community Connections Network , FISHs and SOCS grants and Family Involvement Network), or directly to the Family Support Program by a health, education or agency advocate.

 Medical Eligibility

Medical eligibility for the Family Support Program includes children that have long-term developmental, physical or medical conditions.  All three of the following elements must exist for a child to be eligible for the Family Support Program.

 n       The special health need is complex enough to
            o        Restrict growth, development, or
            o        The ability to engage in usual activities, or
            o        Create a functional limitation
n       The condition requires specialty medical care or more medical services than a typically developing child of the same age,
n       The condition has lasted or is likely to persist at least 12 months to lifelong.

 Financial Eligibility

Raising a child with a special health need can cause financial hardship for families, regardless of their income.  Therefore, Oregon Center for CYSHN will not impose an income limit or conduct a formal financial screening process to determine eligibility.  Financial eligibility is based on the following:

n       Family financial need will be determined by the individual who is facilitating the request for FSP funds on behalf of the family.  A statement of financial need should be included on the request form. 
n       Due to limited funding, priority should be given to those families who have a true demonstrated need.
n       FSP dollars are the payment of last resort.
n       Annual cap of $750.00 per child, per year.

Contact Information

For information or questions about the Family Support Program, please call:

(503) 494-8704
1-877-307-7070
Fax: (503) 494-2755

Resource Consultant, Oregon Center for CYSHN
(503) 494-2765
1-877-307-7070
Fax: (503) 494-2755


Centers for Independent Living

WHAT IS A CENTER FOR INDEPENDENT LIVING?

Centers for Independent Living are organizations run by people with disabilities, for people with disabilities. The mission of each CIL is to help people with disabilities to live as independently as possible in communities that understand and value their contributions. CILs provide four core services: 1) information & referral, 2) advocacy, 3) Independent Living skills development, and 4) peer counseling. Other services are provided by CILs based on individual needs of the community and their consumers.  CIL services move people away from dependence and toward independence.

For a list of services and CIL contacts:  CIL Services Available


DELAYED JUSTICE CAN BE DENIED JUSTICE

By David Kracke, attorney, Nichols & Associates. 

 In the middle of a recovery from a brain injury one of the last things a patient or that patient’s family want to think about is following through with a legal action against any potentially responsible party.  As a result, many victims of traumatic brain injuries will delay beginning the legal process against the responsible party.  This can be a tragic mistake.

 In Oregon, as in all states, there are certain time frames within which a legal action must be brought against a responsible third party.  Typically that time period is two years from the date that the injury occurred.  This general two year limitation for personal injury is subject to some exceptions; however, relying on the exceptions is very dangerous.  Sometimes, however, notice to the responsible party can be required within six months of the date of the injury.  This is true where the responsible party is a state or federal governmental body, including school districts, police agencies, public transporters (such as buses or trains) and others.  Where the party responsible for the injury is a governmental entity, such as where a city worker driving a dump truck runs a stop sign, injuring another pedestrian, there is what is known as a Tort Claims Notice that must be given to the governmental entity advising of a potential claim within six months.

 As a result, if a legal action is contemplated, you should contact an attorney as soon as possible after the injury to determine what timelines control the case.  Some of the most difficult conversations I have had are those where I have informed the injured person that they have waited too long to contact me, and that they are barred by the statute of limitations from pursuing their claim.

 Don’t let this happen to you and your loved ones.  At the very least, call an attorney as soon as possible after the injury to determine what timelines control the case.  You will be glad you did.

 Please contact BIAOR for referrals to attorneys who know and understand TBI.  503-740-3155 or 800-544-5243, info@biaoregon.org

Exercise and Brain Health

Suicide and Depression

Suicide and Depression are significant problems and normal after sustaining a brain injury.  If you or someone you love is having problems please contact someone for help.  BIAOR can give you numbers to call locally or contact the National Crisis number at 1.800.273.8255.  Additional information is available on this website http://www.save.org/

Organizations to contact in Oregon

Columbia Care Services, Inc., ASIST Training in Oregon
Contact: Gary McConahay, PhD
Tel: 541-858-8170

Lane County Prevention Services
Tel: 541-682-4160

NAMI - Oregon
Tel: 503-230-8009
Toll-Free: 800-230-2751

Oregon County Crisis Lines and Mental Health Resources, from the Department of Human Services

Oregon Partnership
Tel: 800-282-7035

Southern Oregon Adolescent Study & Treatment Center
Tel: 541-476-3302


 
FAMILY


Brain Injury Recovery Kit 

The Brain Injury Recovery Kit is a unique, patented system invented by Lisa Keller – a creative individual who sustained a brain injury – and her case manager, Sandra Knutson, CRC, CCM, CDMS, a professional specializing in the needs of individuals and their families after brain injury.

An extensive page to read and you can also purchase the Package from our online store.  BIAOR has a very small limited number of kits.

Brainline.org
The site was created by public television and radio station WETA, with funding from the government's Defense and Veterans Brain Injury Center. Brainline offers such online tools as webcasting, videos, a Facebook page, font enlargement, a glossary that can pop up inside text and a one-click option that translates all text into Spanish.

CaringBridge™.  http://www.caringbridge.com

Some hospitals are now offering a service that provides personal web pages for families. One service is called CaringBridge™.  A designated family member is established as the gatekeeper for the site and given a password to create a web page using the hospital computers. Instructions are posted on the CaringBridge website and are easy to follow - even for people with little knowledge of computers. Once the web page is established, the family can place photos and updated information about the patient on the site. Instead of having to spend hours on the telephone to share information, the designated web page author can add information at his/her convenience. Family members and friends can access the information at any time -day or night - by going to the site. They can also sign a guest book or leave messages for the patient.  The CaringBridge web pages (and similar services) offer a way for patients and families to stay connected and informed - no matter what their location or time of the day. The service is sponsored by hospitals and provided to patients free of charge.  According to CaringBridge's website, more than 35,000 patient sites have been created since its inception in 1997. More than 210 million visits have been made to the site and up to 1,400 new sites are created each month.

 
 

Home-Based Cognitive Stimulation Program  http://main.uab.edu/tbi/show.asp?durki=49377&site=2988&return=9505

 The UAB Home Stimulation Program is a free program that provides activities to use with individuals following their brain injury. These activities are designed to assist the individual in recovery of their thinking skills. Each activity provides a group of tasks listed by their level of difficulty. The tasks range from the least challenging (Level 1) to higher levels that are progressively more challenging.

You can select activities you feel might be appropriate and increase the level of difficulty by selecting appropriate tasks as progress warrants. Work on several tasks each day and change activities every few days to provide variety. PDF file with program lessons.



 

GUIDE FOR FAMILIES

Facts About Concussion and Brain Injury Brochure (.pdf)

Understanding Brain Injury: Guide for the Family (.pdf)
Brain injury is a life-altering event that affects virtually every area of a person's life - including his or her relationship with family members and others close to him or her.

The Mayo Clinic has prepared a 34-page booklet to help families learn more about TBI and adjust to these new conditions: Understanding Brain Injury: Guide for Family and Understanding Brain Injury: Guide for Family in Spanish.

 This booklet contains information on the following topics:

·                  The structure and function of the human brain

·                  The causes of brain injury

·                  The recovery process

·                  Behavior, communication, fatigue and other changes after brain injury

Stroke

Mentoring Partnership Program:  Program Manual and Mentor Training Workbook

A growing body of literature validates the benefits of peer support for families facing medical crises; however, no such model for individuals with TBI or their families has previously been implemented. We at Mount Sinai have created a mentoring program for individuals with TBI and their families within New York State and provided assistance to the New Jersey Brain Injury Association as well as to other groups to develop similar programs. Many of these programs have been evaluated, showing the benefits to participants in mentoring.

In a Mentoring Partnership Program, individuals with TBI or family members who are veterans of the experience of TBI (i.e., mentors) are trained and then matched with individuals with TBI or their family members who are new to the challenges of TBI (i.e., partners), to provide information and counsel, largely by phone.

The first of these two publications introduces the concept, workings, development and evaluation of a mentoring partnership program. The Program Manual is based on the experience of creating such programs in New York and in New Jersey, and on the desire to provide resources that others need to create similar programs in their own region of the country. Its companion volume provides materials used by individuals being trained by a Mentoring Partnership Program to provide peer mentoring.

 

Elements of Effective Practice for Mentoring™, Third Edition

Checklist for Mentoring Programs

 

Elements of Effective Practice™ ToolKit

How to Build a Successful Mentoring Program Using the Elements of Effective PracticeTM is a comprehensive toolkit, with tools, templates and advice for implementing and adhering to the second edition of the Elements — rigorous guidelines that, when followed, will help to ensure quality mentoring.

Whether you are new to mentoring or a seasoned veteran, this tool kit will save you time and effort because it contains materials and information you need to start or maintain a quality mentoring program. The tool kit is written to follow the format of the Elements, but it allows you to take portions of it in a different order, depending on whether you are starting or strengthening your mentoring program.

 

Download the full toolkit in English (PDF, 1MB) or Spanish (PDF, 3MB) or by section:


Downloadable Tools

The tool kit contains OVER 160 ready-to-use tools that you can download and adapt to your program's needs. While the tools will be helpful on their own, they are much more effective when combined with the information available in the toolkit. Please take a moment to download the toolkit.

 

Tools available

 

Resource Links

American Academy of Pediatrics (AAP)
http://www.aap.org
The AAP is committed to the health and well-being of infants, adolescents, and young adults. The website offers news articles and tips on health for families.

Brain Injury Resource Center  www.headinjury.com/
Providing a wealth of information, creative solutions and leadership on issues related to brain injury since 1985

brainandspinalcord.org,
A resource for those looking for information about brain and spinal cord injuries and their effects.

Birth Injury Guide
http://www.birthinjuryguide.org/brain-damage/
Birth Injury Guide is a comprehensive informational website on all types of birth injuries providing helpful information and guidance to parents if their child was born with a birth injury.

Child Brain Injury Trust (UK)
http://www.cbituk.org/

Head Injuries and Children
http://kidshealth.org/parent/firstaid_safe/emergencies/head_injury.html
Provides information and links for parents and professionals relating to head injuries in children.

National Center for Injury Prevention and Control (NCIPC)
http://www.cdc.gov/ncipc
The website of NCIPC contains a variety of injury prevention information.
Facts About TBI in PDF   Spanish fact sheet in PDF

Network of Care
http://oregon.networkofcare.org/
State-wide community-based, resources and tools for seniors and peope with disabilities; mental health; and children ages 0-5.

Survivor Website & Blogs

Eane Huff - http://eanehuff.com
Eane Huff is the survivor of two head injuries.  These head injuries have given Eane a difference perspective on what rehabilitation and recovery really need to include. Eane has written a book that explains his road to recovery,  Heads Up!.  Eane has succeeded in life because of the skills in this book, and his reliance on them.  He lives and succeeds with the challenges that head injury has given him. He smiles because he realizes his achievements, and that's why he has written what has in this manual.  If you're reading this, chances are you or someone you love has been challenged by a head injury.  The trial of a head injury is sizable , but it can be overcome.  You control your recovery-how strong is your desire to the the best you can be?

Second Chance to Live  -  http://secondchancetolive.wordpress.com/

Craig J. Phillips, in 1967 -- at the age of 10 --sustained an open skull fracture with right frontal lobe damage, a severe brain contusion with brain stem involvement and was in a coma for 3 weeks.  Because neurological rehabilitation was not available in 1967 he was essentially on his own. With the encouragement of family, hard work, persistence and tenacity he taught himself how to walk, talk, read, write and speak in complete sentences. Not expected to survive the night of the car accident in 1967, or succeed beyond high school academically Craig went on to obtain both undergraduate and graduate degrees. He is a master's level rehabilitation counselor, having lived with a brain injury and an invisible disability for 42 years. On February 6, 2007 I created Second Chance to Live. This site was created to share the principles and strategies that he used to encourage, empower and motivate his ability to succeed far beyond all reasonable expectations. The mission of Second Chance to Live is to empower individuals to empower themselves, their dreams and their destinies -- regardless of their disabilities or disadvantages.

The Social Security and Disability Resource Center - www.SSDRC.com
This website provides a detailed overview of how the federal disability system works (social security disability and SSI) and also provides answers to many questions that applicants typically have, but often have trouble finding answers to. For the most part, the site is based on the author's personal experience as a former disability-medicaid caseworker, and also as a former disability examiner for the social security administration

 
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